Archive forNOVEL Projects

NOVEL News

NOVEL Highlights:

New URL! You can now find NOVEL at the new, shortened URL, http://NOVEL.utah.edu. Please bookmark that!

New Collection: Robert B. Daroff, MD, Professor of Neurology at the School of Medicine at CASE Western Reserve University has generously contributed his collection of instructional video on eye movements. These are digitized from an earlier set of VHS tapes. Each tape is available in its complete form, and is also divided into smaller clips representing distinct topics for a total of 55 video clips. Each clip is available for viewing by streaming video or for download. The clips are available for educational, not for profit use. Credit should be given to Dr. Daroff and NOVEL when used with students or other non-profit educational settings. Minor adjustments are still being made to the collection, but it is ready for use now. http://library.med.utah.edu/NOVEL/Daroff/

Near Completion: Shirley H. Wray, MD, PhD, is nearing completion of her remarkable video collection. As Professor of Neurology at Harvard Medical School, and former Director of Neurovisual Disorders at Massachusetts General Hospital, Dr. Wray has collected an incredible array of more than 160 patient case videos. As the collection nears its complete state, each case will have a thorough care report included int he description, as well as PowerPoint lectures attached covering individual cases, diseases and diagnoses. These collective materials provide a rich educational resource. The materials are available for educational, not for profit use. Credit should be given to Dr. Wray and NOVEL when used with students or other non-profit educational settings. Minor adjustments are still being made to the collection, but it is ready for use now. http://library.med.utah.edu/NOVEL/Wray/

Database Upgrade: The NOVEL database, CONTENTdm, which hosts the descriptive records linking to the educational resources was recently upgraded. Some minor changes in display are evidence of the upgrade. Otherwise, the records and links should continue to perform as they always have. Please report any oddities.

As always, please use our Comment button or Feedback link in the left side panel to send us your comments and suggestions. If you wish to receive monthly news updates, please register on the NOVEL Web site. Click on the Make A Comment button on the home page, send comment and check the Register box. Or, just send us your comments without registering. You can also read this in the “About NOVEL” area of the Web site. http://library.med.utah.edu/NOVEL/about

Nancy Lombardo
NOVEL Project Director
library.med.utah.edu/lib/faculty/conta…

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JNO Archives in NOVEL

The NOVEL team is adding the entire archive of the Journal of Neuro-Ophthalmology (JNO) to the NOVEL collections. Lippincott Williams & Wilkins (LWW) has transferred the complete collection of JNO electronic archives to NOVEL. This contains the volumes from 1994 to the present. The articles are being catalogued as a new collection. This will provide an alternative means of accessing and preserving the literature, convenient to NOVEL users. Articles from each new JNO issue will be added as they are released from the one year publisher’s access embargo. Currently, 1994-2004 are available on the NOVEL Web site: http://library.med.utah.edu/novel/jno

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Rare Disease Registry

NOVEL has established a gateway for a Rare Disease Registry. Find the page at:

http://library.med.utah.edu/NOVEL/rare

This registry of rare visual diseases provides a mechanism of communication between Neuro-ophthalmologists who see rare and unusual diseases. This registry will coordinate research on these rare diseases. Neuro-ophthalmologists have agree to be the “stewards” of clinical information (all HIPPA compliant) on conditions rare enough that no single institution can accumulate enough experience to understand either the natural history or the best treatment for a condition. By combining the efforts of our members at 120+ American medical schools, along with their international colleagues, we will collaboratively research these diseases and systematically investigate how to improve patient outcomes.

The rare diseases selected at this time are:
Autoimmune Mediated Optic Neuropathy
Chiari mimicking P. Cerebri
Genetic eye movement disorder
Posterior cortical atrophy
Sarcoid optic neuropathy
Susac’s Disease

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