The NOVEL team is adding the entire archive of the Journal of Neuro-Ophthalmology (JNO) to the NOVEL collections. Lippincott Williams & Wilkins (LWW) has transferred the complete collection of JNO electronic archives to NOVEL. This contains the volumes from 1994 to the present. The articles are being catalogued as a new collection. This will provide an alternative means of accessing and preserving the literature, convenient to NOVEL users. Articles from each new JNO issue will be added as they are released from the one year publisher’s access embargo. Currently, 1994-2004 are available on the NOVEL Web site: http://library.med.utah.edu/novel/jno
NOVEL is pleased to note that our collections are listed as a “neurology-related websites with high-volume, high-quality image resources” on the AAN Web site. In their portal, titled, “Finding Neuroimages on the Internet,” authors Daniel B. Hier, MD, MBA, FAAN, AAN.com Education Editor (U. of Illinois at Chicago), and Mike Petkovich include NOVEL as one of the better examples of neuroscience directories or libraries for targeted searches.
Find the list of excellent resources, including NOVEL, at:
NOVEL has established a gateway for a Rare Disease Registry. Find the page at:
This registry of rare visual diseases provides a mechanism of communication between Neuro-ophthalmologists who see rare and unusual diseases. This registry will coordinate research on these rare diseases. Neuro-ophthalmologists have agree to be the “stewards” of clinical information (all HIPPA compliant) on conditions rare enough that no single institution can accumulate enough experience to understand either the natural history or the best treatment for a condition. By combining the efforts of our members at 120+ American medical schools, along with their international colleagues, we will collaboratively research these diseases and systematically investigate how to improve patient outcomes.
The rare diseases selected at this time are:
Autoimmune Mediated Optic Neuropathy
Chiari mimicking P. Cerebri
Genetic eye movement disorder
Posterior cortical atrophy
Sarcoid optic neuropathy
A new Patient Portal has been established in NOVEL. The collection of resources is based on the collection of patient brochures created by NANOS members and currently available in the NANOS web site. 14 topics are covered. Each topic entry includes some or all of the following information links: the NANOS patient brochure, links into MedlinePlus for patient oriented information, a live PubMed search leading to the most current biomedical literature, links to other authoritative Web sites, and links to support groups when available. The resources were identified and organized by the NOVEL team, then reviewed and refined by the NANOS Patient Education Committee, led by Luis Mejico, MD.
As additional patient brochures are developed by NANOS members, topics will be added to this patient portal Currently, the Patient Education Committee is working to translate the brochures into multiple languages.
Please feel free to suggest topics for development, or volunteer to work with the Patient Education Committee to develop patient brochures on new topics.
Find the NOVEL Patient Portal at:
NOVEL resource users: please note that the University of Utah Marriott Library IT staff is conducting routine maintenance late tomorrow, Tuesday, August 12, on the CONTENTdm infrastructure. Access to the NOVEL collections hosted at the University of Utah will not be available from 5:00-10:00 p.m., Tuesday. Access to NOVEL collections will be restored by 10:00 p.m. Tuesday.
Welcome to the new NOVEL Web site design. It is fresh and bright and a whole new face for our project. Please review it at: http://library.med.utah.edu/NOVEL. Use the Suggestions link on the left side panel to send us your comments and ideas for improvements. New collections are being added, too. Watch this blog for news of the new! Or, subscribe to the blog’s feed to receive alerts in your favorite RSS reader.
NOVEL Project Director
The NOVEL project (Neuro-Ophthalmology Virtual Education Library) has just completed the addition of a new collection from John S. Kennerdell, MD, noted as a leader in the surgical treatment of orbital tumors. Dr. Kennerdell recently retired as professor of surgery (ophthalmology) at Medical College of Pennsylvania, chairman of the department of ophthalmology at Allegheny General Hospital, and adjunct professor of both neurology and ophthalmology at the University of Pittsburgh School of Medicine.
Dr. Kennerdell has received numerous professional awards during his career, including the Senior Honor Award of the American Academy of Ophthalmology in 1997. He has made more than 20 presentations throughout the world and his published contributions to medical literature have resulted in more than 130 peer-reviewed papers, 28 book chapters, and two books. NOVEL is very fortunate to have this major contribution to its collections.
Dr. Kennerdell’s collection consists of descriptions of 67 cases involving orbital surgery. The causes range from trauma to benign and malignant tumors. Each case is described through a set of slides, incorporated into a PowerPoint presentation. The cases were described by Dr. Kennerdell and indexed with the professional skills of Ken Rockwell, the professional Map and Science Cataloger at the Marriott Library. Specialized vocabulary was selected from the Medical Subject Headings (MeSH), as well as from the Unified Medical Language System (UMLS), both from the National Library of Medicine. The collection can also be browsed using structured menus. See this unique contribution to the medical science knowledge base at: http://library.med.utah.edu/NOVEL/Kennerdell/
Web 2.0 is all the buzz among the “technorati.” What is Web 2.0 and how can some of these new “Social Networking” and communication tools be useful to NANOS members? This presentation will introduce some Web 2.0 concepts and highlight tools that could be of value to members now.
At the conclusion of the symposium, the attendee should: 1) Be able to participate in the new NANOS Web Forums; 2) Understand the value and use of Audience Response Systems; 3) Be able to locate NOVEL on the Web and use the collections of educational resources; 4) Understand the value of Skype as an online communication tool; 5) Understand the value of RSS feeds (Podcasts) as a current awareness tool; 6) Know the difference between a Blog and a Wiki; 7) Be able to participate in a Blog discussion, or establish their own; 8) Be able to contribute to a Wiki, or establish their own.
* RSS and Podcasts – RSS, or Real Simple Syndication, provides the ability to create a “feed” where information is delivered to the user who is “subscribed.” Many commercial programs are available via RSS feeds, from NPR to many health related information programs. Podcasting is a form of RSS feed, originally associated with the iPod, but in reality available in many formats.
* Wikis and Blogs – These two Web based communication tools are being heavily used. Blogs are chronological logs, or diary like Web sites where single users, or groups can exchange discussion. Wikis are collaborate Web sites that allow multiple users to contribute content to a single site. Both are interesting in that anyone can establish and manage their own Blog or Wiki.
* Skype – Communication via instant messaging, voice, and even video is possible using Skype. Skype users can chat with up to 100 people at a time, can conference call (voice) with up to ten people, and can video call with one person, all for free. For additional fees, Skype users can call from a computer to a land line, land lines can call you on a SkypeIn number, and users can receive voice mail messages.