Archive for the ‘research’ Category

Low health literacy may predict likelihood of being uninsured

Wednesday, May 9th, 2012

search for health literacy postsIn a recent study published in the journal Health Affairs, the Center for Health Policy Research at UCLA conducted telephone surveys of 35,033 adults in five languages (English, Spanish, Korean, Vietnamese, and various dialects of Chinese), trying to quantify “whether low health literacy is associated with lack of health insurance above and beyond other related factors, such as employment, the availability of employment-based insurance, race or ethnicity, and poverty” (from the abstract). Participants were categorized as having low health literacy (HL) if found instructions for prescription medications or other health information as “somewhat difficult” or “very difficult” to understand. Those who found information and prescription instructions “very easy” or “somewhat easy” to understand were rated as having adequate HL.

Among participants with low HL, 28.8% self-reported as being uninsured, compared to 16% of people with adequate HL. For those respondents who reported being employed full time, ” those with low HL were less likely to have been offered employer-based health insurance than those with adequate HL (19.9 percent versus 11.4 percent).” And while participants with low HL were just as likely to be employed full-time as those with adequate HL, they were less likely to have been offered health insurance by their employer.

This study has implications for federal, state and local public policy, such as the implementation of the Affordable Care Act (ACA). Using the results as an estimate of HL levels in the U.S. population as a whole, about ten million of the thirty-two million people who will now have access to medical care under ACA will have low or poor HL, and probably many more than that. How will we implement the ACA in ways that will accommodate persons with:

  • Low HL
  • Inadequate computer and information literacy skills (navigating insurance exchange websites, understanding online forms, weighing pros and cons and trade-offs, etc.)
  • English as their second language
  • Cognitive and physical disabilities

This also has enormous implications for libraries, especially public libraries. At a time when budgets are being frozen or slashed, and branches are being closed, libraries will be hard-pressed to meet the resulting increase in demand for computer and Internet access. Library staff will be asked to help patrons navigate the myriad choices being offered by these insurance exchanges with little or no additional training. And if a librarian helps a patron successfully navigate this selection process, could the library be sued if something goes awry with insurance, medical care, etc?

While the concept of insurance exchanges seems like a good idea, without adequate preparation and support,  it may not succeed, and in a short time opponents of health insurance reform will renew their calls to “repeal Obamacare” as it is currently mis-labeled. To help people successfully access this yet-to-be created system, why not:

  1. Involve librarians in the planning and organization of the insurance exchanges themselves
  2. Provide additional funding to state libraries and the National Network of Libraries of Medicine to train staff at public libraries on how to assist patrons through this process.
  3. Provide additional funding for computers and high-speed Internet access.

Librarians already have too much on their plate, so some things may need to be set aside as a result. But we will cope while doing our best to serve our patrons.

How else should libraries prepare for this next challenge? What have you, our fellow librarians, learned from other endeavors that would assist us in preparing? Tell us!

Researchers and information literacy

Friday, May 4th, 2012

Vitae, an organization in the UK dedicated to enhancing researchers’ skills and employability, has recently released two publications on the relevance of information literacy (IL) to research:

  • a short booklet aimed at researchers explaining the relevance of information literacy to their work, and
  • a two-page pamphlet version of key information from the booklet.
SCONUL 7 pillars of information literacy

click to enlarge

Included in these materials is a diagram of “Information literacy lens on the Vitae Researcher Development Framework using the SCONUL Seven Pillars of Information Literacy.” IL for the researcher involves the ability to:

  • Identify an information need for answering a research question,
  • know the Scope of gaps in their current knowledge that need filling,
  • Plan strategies for finding needed data and information,
  • Gather data, information and other needed resources,
  • review and Evaluate the research process and resulting data
  • Manage information so it is organized both professionally and ethically,
  • apply and Present research results by synthesizing new and old information to create new knowledge, and disseminate it in multiple ways

As discussions in our regular “Librarians Meeting” indicate, academic libraries supporting research need to move from a ready-to-help-librarian model, to a partnership with researchers where we bring our expertise at organizing and finding information to the research planning process. Our challenge is to build collaborative relationships with researchers at our institutions so that as they begin planning research, we can facilitate the process so research information and results are well-organized, and packaged for reuse. Eccles Library is dedicated to supporting the medical research community, and has on staff a dedicated Research Librarian, Abby Adamczyk.

Are you a researcher planning a new endeavor? Have you ever considered partnering with a librarian during the planning process? Tell us about it!

Home visitation, depression and health literacy

Wednesday, May 2nd, 2012

Health literacy logoParents’ health literacy level strongly affects their child or children’s health, and having a depressed parent only increases the risk of adverse health outcomes. The Center for Health Literacy Promotion teamed up with the Department of Health Services at the University of Washington to study whether depression impairs health literacy and impedes efforts to promote health literacy through home visitation.1

From 2006 – 2008, families in a six-site nationwide study participated in a program to enhance parenting skills. Participating parents were monitored for “depression, health- and healthcare-related practices, and surrounding family conditions at baseline and 6-month intervals for up to 36 months.” Data from this study, available in a publicly-funded AHRQ/NIH database, was recently analyzed, and while participants began with reduced health literacy skills, “after 1 year of enhanced home visitation, vulnerable parents were better able to manage personal and family health and healthcare, especially if depressed.” While the sample size (2,572 parent/child dyads) was modest, the findings demonstrate one way we can improve parental health literacy levels even among depressed parents.

In addition to demonstrating the benefits of home visitation in improving health literacy, this study provides support for those that argue for making publicly-funded research data available to all. While no less important back then, health literacy was not the burning topic in 2006-2008 as it is today. Principal investigators had no idea that their work could or would be used in this way. If this data was locked behind a publisher’s pay-wall, this study might never have happened. Because it was publicly available, it could be re-used to test new ideas and ways to help people today.

Researchers must have open access to as many data sources as possible in order to find new ways to help those in need. Access must take precedence over ownership and control when the health outcomes of vulnerable populations (in this case, children) is at stake.

What data sources should be made accessible that are not available right now? Or, what publicly available data/studies/etc. would you like to see analyzed in new and creative ways? Tell us about it!

Reference:

1.    Smith SA, Moore EJ. Health Literacy and Depression in the Context of Home Visitation. Maternal and child health journal. Nov 26 2011.

Who can and should have access to research?

Monday, April 30th, 2012

Open Access logoIn a recent article in The Economist magazine, it makes the argument that “When research is funded by the taxpayer or by charities, the results should be available to all without charge.” The article goes on to point out the huge profits (and increases in profits) by publishers, and how scientists are making this possible by providing their research free-of-charge in exchange for publication.

This is not a call to break up or bring down big-name publishers. They provide services that libraries have come to depend on. But if research is funded by public funding — gathered through taxes or charitable contributions — then the public should have complete and prompt access to its results, good or bad.

Publishers counter with (among many claims):

  • Their work provides added value to the research, and
  • The current one-year embargo is not enough time to recoup the investment made in adding value.

In testimony before Congress, one publisher argued

“The cutting-edge research in psychology published by APA is rarely obsolete within a year and may have a shelf life of five to 10 years or more. Furthermore, only 16 percent of the eventual ‘lifetime’ usage of APA journal articles—in the form of downloads—occurs within the first year after publication.”

The best rebuttal to this argument actually came in the form of a comment on the article in the Chronicle of Higher Education: publishers “neither pay for the intellectual content they publish (authors get no payments including no royalties), nor do they pay for the intellectual effort of the peer-reviewers – all of that professional/academic expertise is given to them for free.”

In addition, is the “added value” anywhere close to the prices publishers charge for access to this information? Now there is an area ripe for research!

One argument for open access is seldom, if at all, being made, and for this author, it is the most compelling: lives may hang in the balance. Some people cannot wait one, five or ten years for the publication of research that will lead to life-saving medical advances. Loosely described, building up collected knowledge of research is like arranging a box of dominoes so they are all standing on end, and next to one another. Arrange them all in the right way, and a single tap will send them all cascading into one another, until all are knocked down.  Researching and determining steps to treatments to take down conditions such as diabetes, various cancers, treatment-resistant diseases, and a myriad of other maladies should occur promptly, and benefit the many, not be delayed for the profit of a few.

Critical health literacy: a review and critical analysis

Monday, April 16th, 2012

Health literacy logoIn a recent article published in the journal Social Science and Medicine, author Deborah Chinn (2011) notes that while there is increasing interest in the topic of health literacy,

“there has also been criticism that this concept has been poorly defined, that it stretches the idea of “literacy” to an indefensible extent and more specifically, that it adds little to the existing concerns and intervention approaches of the better established discipline of health promotion.”

She goes on to select one definition of health literacy (Nutbeam, 2000) and using the concept of “critical health literacy” to determine its usefulness in improving the health of communities and individuals. This article concludes that the concept of critical health literacy connects ideas across multiple domains, yet retains “a key focus on the interaction between individuals and information about health” and how information can be used to improve health outcomes.

While much of the research around the topic of health literacy has be quantitative in measure, qualitative research is also needed to address the “socially situated nature of health literacy, involving interpersonal relationships, emotional involvement, and issues of power and resistance” (Chinn, 2011). Knowing how people utilize their personal networks to assemble an understanding of their health situation has the potential to increase the effectiveness of health literacy outreach efforts.

But we cannot stop there. It is also important to know what individuals and organizations benefit from poor health literacy, and what roadblocks and hurdles – legal, political, and more – are being put or kept in place to maintain the status quo.

What questions do you think researchers should be asking about critical health literacy? Where should academic institutions, libraries, non-profit organizations and others be focusing their resources to address this timely issue? Tell us about it!

References:

Chinn, D. (2011). Critical health literacy: a review and critical analysis. Soc Sci Med, 73(1), 60-67. doi: 10.1016/j.socscimed.2011.04.004

Nutbeam, D. (2000). Health literacy as a public health goal: a challenge for contemporary health education and communication strategies into the 21st century. [Article]. Health Promotion International, 15(3), 259.

Helping young cancer patients cope: Re-Mission video game

Tuesday, March 27th, 2012

logo for Hope LabAs reported in the iMedicalApps blog, the non-profit organization HopeLab has created a video game with the goal of helping young people cope with the daily regimen required to fight cancer. Re-Mission features a nanobot (microscopic robot) named Roxxi that “travels through the bodies of patients with different kinds of cancer and battles the disease itself as well as treatment side effects” (from iMedicalApps).

The challenges faced by young people with various forms of cancer are difficult, to say the least: taking a variety of medications such as antibiotics, antiemetics, stool softeners, plus eating healthy when peers and the culture surrounding them are enjoying copious amounts of junk food. Roxxi the nanobot powers-up by following a real-life cancer regimen, and then she sets off to battle cancer.

Does this virtual-ly active role in battling cancer translate into increased motivation and empowerment for the young person playing it? According to a 2008 randomized control trial published in the journal Pediatrics, this video game intervention “significantly improved treatment adherence and indicators of cancer-related self-efficacy and knowledge in adolescents and young adults who were undergoing cancer therapy.”

For those who enjoy them, video games provide hours of satisfying play and escape from day-to-day challenges. A recent study examining the brain activity of patients who played this game provides a glimmer of how it translates into better adherence to the regimen necessary to battle cancer. Using functional magnetic resonance imaging technology to observe the reward circuits in their brains, 57 patients were assigned to either play or watch the Re-Mission video game. The result, as reported in a press release:

“Active involvement in video game play sparks positive motivation in a way that watching and hearing information does not,” said Steve Cole, Ph.D., Vice President of Research and Development at HopeLab, professor of medicine at the University of California, Los Angeles, and co-author of the article. “All participants in the study received the same information. It was the active participation in gameplay that made the big difference in motivation. This study helps refine our ‘recipe for success’ in harnessing the power of play in the service of health.”

screenshot of Re-Mission gameMany libraries have embraced gaming as a way to connect to patrons. Imagine a library with a collection of video games with the artistry of the biggest sellers that promoted healthy living, and help young people cope with life’s challenges. Such an image gives this librarian hope that we might begin reversing the epidemics of obesity and other preventable diseases in this country.

Have you or someone you know played Re-Mission? What other health-inspiring video games would you like to see? Tell us about it!

LIFT Forum: FURTHeR: Searching the University’s Data Resources for Clinical Cohorts

Friday, March 2nd, 2012

LIFT Forum logoPlease join us on Wednesday, March 7, 2012 for the Library and Information Technology Forum. This month features Joyce Mitchell, Associate Vice President for Academic Health IT, talking about FURTHeR: Searching the University’s Data Resources for Clinical Cohorts.  Please join us in the Spencer F. and Cleone P. Eccles Health Sciences Education Building, Room 1730 at 12:30-1:30 p.m. for this program.

Program Description:  The FURTHeR system has been developed to assist the research community with questions related to finding clinical cohorts for research purposes. This system is available to anyone with a University ID, is approved by the Institutional Review Board, and makes de-identified data available from your desktop via a web link. More data sources will become available as the system is expanded. Come and see if it helps you with your questions.

 

Presenter: Joyce Mitchell is the Associate Vice President for Academic Health IT. Faculty and staff from the Academic Health IT office have been working with their counterparts at ITS and the Utah Population Database (UPDB) to make this system possible. Joyce Mitchell is also a Professor and Chair of the Department of Biomedical Informatics in the School of Medicine.

For more details, visit the LIFT Forum page.  Program can be viewed from off-site via links from the web page; and available on demand after the program.

The LIFT Forum is co-sponsored by the Spencer S. Eccles Health Sciences Library and the Media-on-Demand committee.

Questions can be directed to: Jeanne Le Ber; 801-585-6744

New report on youth and digital media

Wednesday, February 29th, 2012

Information literacy logoThe Berkman Center for Internet & Society at Harvard University recently released results from their research that

“seeks to map and explore what we know about the ways in which young users of age 18 and under search for information online, how they evaluate information, and how their related practices of content creation, levels of new literacies, general digital media usage, and social patterns affect these activities” (from the Harvard Law School’s Youth and Media blog).

This report looks not only at patterns of information-seeking behavior, but also the influence of context and demographic factors. It offers four key findings for consideration:

  1. Search shapes the quality of information that youth experience online.
  2. Youth use cues and heuristics to evaluate quality, especially visual and interactive elements.
  3. Content creation and dissemination foster digital fluencies that can feed back into search and evaluation behaviors.
  4. Information skills acquired through personal and social activities can benefit learning in the academic context.

youth and digital media info-graphicAnd it summarizes their findings in a clear and understandable infographic, shown at right (click image to view full size).

It is no small surprise that context and other social cues strongly influence the information-seeking behavior of youth. Humans are innately social creatures, and need connections to others to survive and thrive.

You can read a one-page summary, an executive summary, the full report, or listen to a podcast version courtesy of the aforementioned blog.

What do you think of this report? What did it get right/wrong? Tell us about it!

NCBI Workshops

Monday, February 27th, 2012

National Center for Biotechnology Information logoToday is the first in a two-day series of workshops emphasizing different sets of NCBI resources. Each session uses specific examples to highlight important features of the resources and tools under study and to demonstrate how to accomplish common tasks.

Schedule

Monday, February 27, 2012:

  • 9:00-11:30AM — Sequences, Genomes and Maps
  • 1:00-3:30PM — Proteins, Domains and Structures
  • 3:45-5:00PM — Individual Consultations

Tuesday, February 28, 2012:

  • 9:00-11:30AM — NCBI BLAST Services
  • 1:00-3:30PM — Human Variation and Disease Genes
  • 3:45-5:00PM — Individual Consultations

More information is available on our website, or by contacting Abby Adamczyk, Research Librarian, at email Abby Adamcyzk. See you there!

Teaching medical students to use social media at John Hopkins U

Thursday, February 23rd, 2012

Dr. Meg ChisolmMargaret “Meg” Chisolm is a Twitter user, and an assistant professor in Psychiatry and Behavioral Sciences at Johns Hopkins Bayview Medical Center. As a recent article in the Hopkins Gazette points out:

[Chisolm] “is one of a growing number of medical professionals who, despite the present-day climate of strict patient privacy regulations and oversight, see the benefits of using social media to supplement their work and interact with colleagues, patients and the general public.” She connects with others using her Twitter accounts @whole_patients in order to “demystify psychiatry and psychotherapy for patients and doctors,” and @psychpearls , “which is targeted to learners interested in ‘clinical pearls’ about psychiatry.”

She and a colleague, Tabor Flickinger, a clinical education fellow, are designing a curriculum to train students at the School of Medicine in the use, benefits and potential pitfalls of using social media in medicine. In December 2011 they received an Osler Center for Clinical Excellence small grant award to run a pilot study with medical students during their third year clerkship of 2012 – 2013.

The format of the pilot study will be a voluntary online addition to clinical activities during the eight-week Internal Medicine Clerkship. One group of students will participate in a blog where they can write about and discuss their clinical experiences. Another group will serve as a comparison cohort; they will be studied but will not participate in the blog (from the Hopkins Gazette article).

No doubt many forward-thinking medical institutions, such as the University of Utah, will be watching for the results of this study.

Are you using social media in your practice (medical, psychiatry, or whatever)? How helpful has it been? What have proven to be the pitfalls? Tell us about it!